Home :: Skin Disorders :: Hidradenitis Suppurativa Hidradenitis Suppurativa FoundationHidradenitis Suppurativa is one of the rarest skin diseases on the planet. There is little known about the origins of Hidradenitis Suppurativa and it is a fairly debilitating condition. Causes of Hidradenitis SuppurativaThere is so little known about the disease Hidradenitis Suppurativa that its causes have yet to be discovered. Some researchers believe that there is a link between Crohns disease and Hidradenitis Suppurativa but that link has yet to be proven beyond a doubt. In some studies, there is a link between people treated for sexually transmitted diseases and Hidradenitis Suppurativa. There was an increase of four percent between the normally healthy individuals and those with a sexually transmitted disease that has been recently treated. This has given new hope to those who suffer from this terrible disease as any new development means they are one step closer to a cure. They have also determined that the disease is not contagious but it can be passed from mother to child during the late months of pregnancy. Diagnosis for Hidradenitis Suppurativa
There are a few other diseases that present in the same way as Hidradenitis Suppurativa and they are just as rare but they are treatable. Most likely the doctor will order a skin culture to be collected and sent out for testing. This will help to confirm that the diagnosis is correct and that it is not a lesser known and curable disease. The doctor may also order a battery of blood tests. There are several tests that have proven reliable in diagnosing Hidradenitis Suppurativa and also ruling it out. Check with your doctor about what is right for you in attempting to diagnose any skin condition that you may have. Treatment for Hidradenitis SuppurativaHidradenitis Suppurativa is not a curable disease. Sadly, there are only a few viable treatments that are available and they do not always work. It all depends on the progression of the disease and the person that is being treated. The swollen areas that have become inflamed with pus are drained in one of the treatment options. Doctors believe that this slows the progression of the disease and may help it from further damaging the surrounding tissue. This is not definitive by any means but it does hold some promise too many of the sufferers out there in the world. In certain instances a doctor may choose surgery as a viable option. Removal of the enlarged lumps through surgery has proven effective and in some cases, the lumps have not returned or have returned to a lesser degree that is more manageable to the patient. Surgery is the last resort for some doctors as the surgery is rather invasive and can leave the patient in a lot of pain following the procedure. Radiation therapy is the newest treatment option that is currently available. A small and intense beam of radiation is aimed at the affected area to effectively kill the bad tissue. This treatment has not gained wide spread acceptance as of yet but tests are ongoing and there is hope. Antibiotics have also proved useful in some cases. Doctors are weary of this type of treatment as it has harsh effects on the body and its systems but some of the patients have shown marked improvement with this course of treatment. Symptomsof Hidradenitis SuppurativaHidradenitis Suppurativa presents in three stages. Each stage is worse than the one before it until the disease is fully generated in the body. In stage one large boils or pus filled sacks appear in the folds of the skin, like under the arms. These boils will seep a smelly yellow liquid similar to the oozing of an infected area of the body. In the second stage the boils will become hard and seep even worse than in the first stage. Some patients have noticed that the odor given off by these boils in the second stage is worse and the fluid takes on a sticky consistency. In the final stage, tunnels form around and in between the boils and scars begin to form. This is the most painful time in the disease and it is then that most people seek medical attention for some relief from the pain. This disease is normally slow to progress but it has been know to present quickly in some cases. As the disease progresses the symptoms gradually get worse and the amount of skin that is affected by the disease continues to grow. |
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Visitors' Comments:
| Posted by Melissa | 2007-11-14 |
| My mother has had HS since 84 she is now 45. She is in stage 3 of the disease. It is hard to find a doctor to treat her as they feel it is a waste of time. She is not able to work because she has outbreaks so often not just one or two leasions but 10-20 at a time. She gets them everywhere armpits, under her breast, and in her groin area. She also has severe anxiety and depression because of this disease and that also causes her to break out. She has been battling with Social Security on receiving Disibility for almost 5 years now and they do not consider this diesease to be dibilitating so they will not grant her Disibility. It definately gets worse with age. I just want to suggest to anyone who is in the early stages of HS that wish to do Radiation or other treatments to definately try to do it. My mother is miserable everyday and in pain everyday. She can hardly hold her grandchildren that is how bad this disease has taken over her body. Best Wishes to you all. | |
| Posted by Catherine | 2007-01-06 |
| I want to try the radiation or Carbon-dioxide treatment. I've had HS since I was a child (underarms and groin) and now it has spread to my breasts (age 40). Are there any doctors that specialize in this in the South Texas? Thanks! P.S. Has anyone heard of Zuska's disease? That's what the breast surgeon calls the "aliens" on my breasts. | |
| Posted by Marilyn | 2006-06-18 |
| I have had Hidradenitis Suppurativa for over 30 years. It seems to really like my genital area and upper thighs. You can imagine how embarrassing it is to wear a swim suit! If you read enough, you will find that THERE IS NO CURE! Antibiotics, lotions, even surgery does not work! Do not waste your time on these as in some instances, it can make it worse! The best thing you can do is keep the area as dry as possible, wear loose clothing and keep your fingers crossed. This disease is not from poor hygiene. Also, believe me, it does not go away with menopause. There are articles that say radiotherapy and/or carbon dioxide laser treatments may help, but if you are interested in either of these, I would get at least TWO physician opinions and sometimes the after effects of these are worse than having Hidradenitis Suppurativa. | |
| Posted by C. H. | 2006-05-30 |
| I'm 21 and I've suffered with HS for about 6 years now. I only get the boils on my armpits, and it's very painful, not to mention embarrassing. (For once I would like to be able to wear a tank top!) The medication that my dermatologist prescribed me does NOTHING. I want to have surgery done so that maybe I can lead a normal life... | |
| Posted by Robert F. Yelton | 2006-05-18 |
| I've had HS since I was ten years old. I can not count the times I've had these invasions lanced my stomach,upper inner thighs, buttocks, genitals, crease in my leg... you name it. My question is why is there no awareness because I feel like a leper and most of the times, get lanced three to four times a month. I am exhausted. | |
| Posted by Gerry | 2006-04-23 |
| Hidradenitis Suppurativa, why does it take so long to get cured. Its very painful. | |
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More often than not, Hidradenitis Suppurativa can be diagnosed with a simple physical examination. The signs of this disease are very specific are not easy to overlook. There are occasions when the doctor may want to order some tests to be certain of the diagnosis.